TSBVI Outreach Media : Be sure to select “Panelists and Attendees” from the blue dropdown menu above the chat entry box so everyone can see your comments. Handouts for todays presentation can be found at https://tsbvi.live/coffeehour TSBVI Outreach Media : Be sure to select “Panelists and Attendees” from the blue dropdown menu above the chat entry box so everyone can see your comments. Handouts for todays presentation can be found at https://tsbvi.live/coffeehour winny Chan : San Francisco Tricia Marsh To All Panelists : Wichita FAlls Dagmar Lippert : Copperas Cove. Texas Zenobia Davison : Mansfield, TX Amy Clinton : Abilene, TX Chris Fendrick To All Panelists : Bakersfield, Ca TVI Aristea Longoria : Houston, TX Andrea Amestoy To All Panelists : Boise, ID. im an RN and have 2 kids with USsh 2c. became a tvi when I knew od their diagnosis Cynthia Anderson : Arlington, TX Steffani Leuteneker : Granbury TX Nicole Cabral : British Columbia, Canada Jo Ellen Cloyd : San Antonio, Tx CLARISSA JONES-EDWARDS To All Panelists : MOUNT VERNON, N.Y. Kaycee Bennett : Be sure to select “Panelists and Attendees” from the blue dropdown menu above the chat entry box so everyone can see your comments. CLARISSA JONES-EDWARDS : MOUNT VERNON, N.Y. Margaret Coulter : Toronto, Ontario TSBVI Outreach Media : Handouts for todays presentation can be found at https://tsbvi.live/coffeehour Noan Dublinski : Noan Dublinski from Scottsdale, AZ Linda Jordan : can optometrist or ophthalmologist order genetic testing Kaycee Bennett : They are taking questions at the end, and I will read this to them at that time. Thank you, Linda! If anyone else has questions, feel free to put them in the chat at any time. Ben Shaberman To All Panelists : Yes — MDs can order the test and optometrists can in most states. CLARISSA JONES-EDWARDS : Is there any relationship between CVI and Retinal genetics? Andrea Amestoy : Boise, ID. I'm an RN and have 2 kids with USH 2c. I became a tvi when I knew of their diagnosis Faith Young : Would any of the current research address RP and optic atrophy? Cynthia Bachofer : short, helpful videos under retina education tab and Eye on Education video series Cynthia Bachofer : https://www.fightingblindness.org/educationalvideos CLARISSA JONES-EDWARDS : Thank you for your response. Kaycee Bennett : info@fightingblindness.org Cynthia Anderson : I just heard about a treatment medication for lhon. Could you talk about that? Cynthia Anderson : Idebenone Cynthia Anderson : Lebers Hereditary Optic Neuropathy Noan Dublinski : myretinatracker.org Cynthia Anderson : What about other gens in LCA? Anything in the pipeline? Cynthia Anderson : genes Andrea Amestoy : so great to find out early! you can get a baseline erg when kids are young to give information to science and research! Laura Lebre Anccilotto To All Panelists : What is the link to register for the webinar on Saturday? Jill Smith : My children have a LCA diagnosis, but their kind of LCA hasn't been identified. Cynthia Bachofer : mglaze@fightingblindness.org;bshaberman@fightingblindness.org Jill Smith : thank you. Cynthia Bachofer : It's Sat. 11 AM Central time Laura Lebre Anccilotto To All Panelists : Thank you from Brazil. Zenobia Davison : Yes!! Thank You!!!! Noan Dublinski : https://www.fightingblindness.org/events/seminar-clinical-trial-288 Cynthia Anderson : thanks Noan Dublinski : very welcome Kathleen Boye To All Panelists : thank you so much! for your informative workshop Lynne McAlister : Thank you! Very interesting! Linda Jordan : Very interesting! Thanks for sharing CLARISSA JONES-EDWARDS To All Panelists : Thank you for the excellent presentation. Steffani Leuteneker : Perfect. Thank you so much for all of the great information! Noan Dublinski : Thank you! Dagmar Lippert : Thank you Diana Fitzpatrick : Thanks!!