CHAT - TSBVI Coffee Hour: The Value of Family Engagement: The Transformation to an Equitable Approach for Service Delivery Р8/22/22 From Angela Howe to Everyone: Angela Howe Grand Prairirie Tx From Linda Jordan to Everyone: Hello from Boerne, TX From Amanda Crayton to Host and Panelists: Good afternoon from Albany, NY! From Lannette Burlingame to Everyone: Good afternoon from Kilgore, TX From Kate Borg (she/her) to Everyone: Welcome! Make sure to set your chat to “everyone.” Here's the link to the handout: https://tsbvi.live/coffeehour From Cheryl Schulik to Everyone:Cheryl Schulik- East TexS From Margaret Hunt to Everyone: Hi from NC From Kate Borg (she/her) to Everyone: Austin. We have thunder. 🙂 From Laura Swinney to Everyone: Hello from Pleasanton, TX From patricia gallardo to Everyone: Hi from L.A. From linda brown to Everyone: Hello from New Caney, Texas From Molly Black to Everyone: Pittsburgh, PA From Nicole Resendez to Everyone: Hello from Portland, TX From Shawn Gumeny to Everyone: Hello from NJ! From Kate Borg (she/her) to Everyone: Welcome! Make sure to set your chat to “everyone.” Here's the link to the handout: https://tsbvi.live/coffeehour From Stephanie King to Everyone: Stephanie King - Sheldon ISD (Houston) From Christal Suson to Everyone: Hello from Fort Worth, Tx From Kate Borg (she/her) to Everyone: link to the handout: https://tsbvi.live/coffeehour From Emily Coleman to Everyone: Good afternoon, all, from Austin! From Kate Borg (she/her) to Everyone: link to the handout: https://tsbvi.live/coffeehour From CLARISSA JONES-EDWARDS to Everyone: Hello, Clarissafrom New York From Kate Borg (she/her) to Everyone: link to the handout: https://tsbvi.live/coffeehour From Karla Puertas to Everyone: Hi, Karla From El Paso,TX From Megan Cote to Everyone: Picture Description: Jaxson as an infant. He has his eyes closed and is wearing blue cap while wrapped in colorful blanket. From Megan Cote to Everyone: Picture Description: Jaxson as a 16-week old infant laying in a hospital bed with breathing tube inserted in his nose. He has dark curly hair and is wearing a blue, yellow, and gray shirt with hospital blanket draping part of his body. From Megan Cote to Everyone: Picture Description: Hospital room with side view of crib. Outside of crib holding hospital equipment and inside of crib showing infant toys. From Megan Cote to Everyone: Picture Description: Donia holding Jaxson who is now a toddler. Next to her is a woman holding a drink and another mother holding her young son with Charge Syndrome. Each woman is wearing a name badge and in the background are people attending a CHARGE Syndrome Social in a large ballroom. From Megan Cote to Everyone: Picture Description: Jaxson with an oxygen tube in his nose is laying on his stomach in a hospital bed. His arms are supported by a bolster that has baby toys attached to it. In front of him is a mirror affixed to the railings. Jaxson lifts his head to look at his reflection in the mirror and then rests a moment before lifting his head again. From Megan Cote to Everyone: Picture Description: Jaxson sitting with a white circular tray in front of him. He is wearing a black and white shirt. He has dark curly hair with a black BAHA band on his head. Around his neck is a tracheostomy and white band. On the tray is a green colored baby ball and a Hungry Caterpillar plush toy. In the background are more toys and a sofa. From Megan Cote to Everyone: Woman sits on sofa holding a children’s book in lap. She signs then points to a picture in the book, nodding “yes” as Donia (sitting near her on the same sofa) practices the signs the woman is teaching her. From Megan Cote to Everyone: Jaxson wearing a T-shirt that says “Super Kid and blue shorts. He is sporting blue sunglasses and is smiling as he navigates his walker down a brick sidewalk. From Megan Cote to Everyone: Jaxson sits on a blue and white striped blanket with another little boy and female. There are various toys on the blanket, including a bucket with multicolored rice and small toys in front of Jaxon. Jaxon holds a rainbow fan in both hands and his friend holds a rainbow pinwheel. From Megan Cote to Everyone: Donia smiling while Jaxson sits in her lap. Both are looking in the direction of the camera. Jaxson wears his blue-framed eyeglasses and white headband securing his BAHA in place. From Megan Cote to Everyone: Donia and Jaxson sitting on a rug with their backs to a sliding glass door. Taped to the glass is a sign language alphabet poster. Jaxson is sitting between Donia’s legs with a children’s picture book in his lap. He is lifting a flap on one of the pages while Donia leans close to him and attends to what her son is doing. From Megan Cote to Everyone: Jaxson is held by his dad who is standing next to Donia. In front of Donia is Jaxson’s brother. They all are wearing blue t-shirts that say “Team Jax #CHARGE ON.” Picture taken from interior balcony of large hotel. From Megan Cote to Everyone: Jaxson stands with his back to the camera in front of a large circular window framed by cement. Next to him is his long white cane. In the center of the window swims a shark and several smaller fish. From Kaycee Bennett to Everyone: Wow, so beautiful, Donia! From Karla Puertas to Everyone: Thank you for such an Amazing story From Kaycee Bennett to Everyone: link to the handout: https://tsbvi.live/coffeehour From Megan Cote to Everyone: Picture of mother leaning over a baby in a hospital bed. Baby has heart monitors on his chest. Words to left of picture read, “…the guiding force behind all life decisions…”. Words to the right of picture reads, “…unique lived experiences…” From Megan Cote to Everyone: A young boy is smiling while laying across the chest of a lady who is resting her head on a pillow. The boy is propping his elbows on her body with his hands on supporting his chin. In the background are toys and children’s tables. Words to left of picture read, “…goals they choose…”. Words to the right of picture reads, “…find and elevate their voice…” From Megan Cote to Everyone: Girl around the age of 8 is sitting on a play scape landing. She is smiling while looking at her sister who is sitting in her lap. The sister is reaching out to touch a bar on the play scape. with her arms wrapped around her sister while her sister rests on her lap. holding her sister in her lap. Words to left of picture read, “…sense of belonging in their community…”. Words to the right of picture reads, “…creating genuine relationships in and outside the family…” From Megan Cote to Everyone: Dad dressed as “Where’s Waldo” kneels next to his three children who are dressed in Halloween costumes: skunk, witch, Disney Princess, and Harry Potter outside of a school with people entering the building in the background. Words at the bottom of the picture reads, “…systemic inclusion of families…” From Megan Cote to Everyone: Picture of family of four all smiling. Mom and standing in the background with Mom resting her arms across the shoulders of their daughters. Words to left of picture read, “…promotes equity and inclusiveness…”. Words to the right of picture reads, “…responsive to family’s cultures and languages…” From Megan Cote to Everyone: Family of four smiling. Dad holds one son in his arms and Mom holds younger son in hers. In the background is the banner for the CHARGE Syndrome Foundation Dallas Conference banner. Words to left of picture read, “…honors each family’s dynamics, beliefs, values, and priorities…”. Words to the right of picture reads, “…connecting all family members…” From Megan Cote to Everyone: Mom stands in front of son who has his head slightly bent down. She has both her hands under his using tactile sign language. In the background is a kitchen. Words at the bottom of the picture read, “increases belonging…” From Megan Cote to Everyone: Family of five smiling. Mom and Dad are cuddling two of their sons while the eldest holds a baby wrapped in a blanket. Words at the top of the picture read, “empowers families to plan and enjoy their lives…” From Kaycee Bennett to Everyone: link to the handout: https://tsbvi.live/coffeehour From Julie Maier to Everyone: Include family members on advisory committees. From Jennifer D'Alessandro to Everyone: First by ensuring that the families are even aware of resources From Kate Borg (she/her) to Everyone: Spend time outside of IEP meetings receiving family input From Linda Jordan to Everyone: communication and exploration From Margaret Hunt to Everyone: Families to be included in therapy and classroom sessions in the school From Franchesca S to Everyone: Entry and Exit Surveys. From Kaycee Bennett to Everyone: link to the handout: https://tsbvi.live/coffeehour From Kate Borg (she/her) to Everyone: I'm wondering some of the most common feedback areas you hear from families. Where do they feel the least involved? From Kate Borg (she/her) to Everyone: Yes! We so often don't remember the privilege behind just being able to attend meetings, Back to School nights, etc. This is such great feedback, all. Thank you. From Kate Borg (she/her) to Everyone: I'm happy to keep the mic, as it were. 🙂 Apart from this excellent coffee hour, what can we do to best support you in sharing this information? From Margaret Hunt to Everyone: I've been involved in Person Centered Planning meetings with families and school staff. It's a wonderful experience to connect. From Kaycee Bennett to Everyone: link to the handout: https://tsbvi.live/coffeehour From Megan Cote to Everyone: Link to register for the NFADB event on Oct 27th: https://nfadb.org/event-4866489 From Julie Maier to Everyone: Thanks for another terrific Coffee Hour! From Yolanda Shaw to Everyone: Excellent coffee hour! Thanks for all of the info! From Kate Borg (she/her) to Everyone: Code: 082222